This study just came out. What else is this HPV virus going to cause? Now Lung Cancer?
Have a Great Day!
This study just came out. What else is this HPV virus going to cause? Now Lung Cancer?
Have a Great Day!
The following was posted in the Los Angeles Times on April 7th, 2013 by Susan Silk and Barry Goldman:
When Susan had breast cancer, we heard a lot of lame remarks, but our favorite came from one of Susan’s colleagues. She wanted, she needed, to visit Susan after the surgery, but Susan didn’t feel like having visitors, and she said so. Her colleague’s response? “This isn’t just about you.”
“It’s not?” Susan wondered. “My breast cancer is not about me? It’s about you?”
The same theme came up again when our friend Katie had a brain aneurysm. She was in intensive care for a long time and finally got out and into a step-down unit. She was no longer covered with tubes and lines and monitors, but she was still in rough shape. A friend came and saw her and then stepped into the hall with Katie’s husband, Pat. “I wasn’t prepared for this,” she told him. “I don’t know if I can handle it.”
This woman loves Katie, and she said what she did because the sight of Katie in this condition moved her so deeply. But it was the wrong thing to say. And it was wrong in the same way Susan’s colleague’s remark was wrong.
Susan has since developed a simple technique to help people avoid this mistake. It works for all kinds of crises: medical, legal, financial, romantic, even existential. She calls it the Ring Theory.
Draw a circle. This is the center ring. In it, put the name of the person at the center of the current trauma. For Katie’s aneurysm, that’s Katie. Now draw a larger circle around the first one. In that ring put the name of the person next closest to the trauma. In the case of Katie’s aneurysm, that was Katie’s husband, Pat. Repeat the process as many times as you need to. In each larger ring put the next closest people. Parents and children before more distant relatives. Intimate friends in smaller rings, less intimate friends in larger ones. When you are done you have a Kvetching Order. One of Susan’s patients found it useful to tape it to her refrigerator.
Here are the rules. The person in the center ring can say anything she wants to anyone, anywhere. She can kvetch and complain and whine and moan and curse the heavens and say, “Life is unfair” and “Why me?” That’s the one payoff for being in the center ring.
Everyone else can say those things too, but only to people in larger rings.
When you are talking to a person in a ring smaller than yours, someone closer to the center of the crisis, the goal is to help. Listening is often more helpful than talking. But if you’re going to open your mouth, ask yourself if what you are about to say is likely to provide comfort and support. If it isn’t, don’t say it. Don’t, for example, give advice. People who are suffering from trauma don’t need advice. They need comfort and support. So say, “I’m sorry” or “This must really be hard for you” or “Can I bring you a pot roast?” Don’t say, “You should hear what happened to me” or “Here’s what I would do if I were you.” And don’t say, “This is really bringing me down.”
If you want to scream or cry or complain, if you want to tell someone how shocked you are or how icky you feel, or whine about how it reminds you of all the terrible things that have happened to you lately, that’s fine. It’s a perfectly normal response. Just do it to someone in a bigger ring.
Comfort IN, dump OUT.
There was nothing wrong with Katie’s friend saying she was not prepared for how horrible Katie looked, or even that she didn’t think she could handle it. The mistake was that she said those things to Pat. She dumped IN.
Complaining to someone in a smaller ring than yours doesn’t do either of you any good. On the other hand, being supportive to her principal caregiver may be the best thing you can do for the patient.
Most of us know this. Almost nobody would complain to the patient about how rotten she looks. Almost no one would say that looking at her makes them think of the fragility of life and their own closeness to death. In other words, we know enough not to dump into the center ring. Ring Theory merely expands that intuition and makes it more concrete: Don’t just avoid dumping into the center ring, avoid dumping into any ring smaller than your own.
Remember, you can say whatever you want if you just wait until you’re talking to someone in a larger ring than yours.
And don’t worry. You’ll get your turn in the center ring. You can count on that.
Susan Silk is a clinical psychologist. Barry Goldman is an arbitrator and mediator and the author of “The Science of Settlement: Ideas for Negotiators.”
I have been in situations where people have said the wrong thing to me, and I just shrugged it off. This is a great way to educate people when they hear of bad news concerning family, friends or colleagues.
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From my family to you and yours may you be blessed with the spirit of Easter!
Have a Great Day!
I went to bed last night in so much pain I was fighting back tears. I don’t remember the last time I had a flair-up this bad. I was blaming the weather. I live in Canada so another snow storm in March is not unheard of. I was thinking of my sister in Alberta who also has fibro and the last time I was talking to her she was saying how she loved her pain meds because she was able to do things. She was able to function. Living here in Ottawa, all the doctors will give me is muscle relaxants, and Lyrica which I will not take anymore because the side effects were worse than what help they gave me. My rheumatologist has prescribed a low dose “marijuana pill” which again I don’t take because I found it didn’t help. So I was lying there wondering how I got so bad when 2 years before I was doing so well in managing this monster myself.
Life can change in an instant. Your health can change overnight, even if you are doing everything right. I was doing so well 2 years ago my doctor and I were discussing my return to work. That was big for me. I have been off work since 2006. Then everything changed. I had surgery in July 2010. Since that surgery my overall health went downhill. I gained a lot of weight. My doctor finally put me on thyroid meds. They stopped the weight gain but it was almost impossible to lose the weight. My legs kept swelling. I went to the doctor several times. They gave me a water pill that didn’t do anything. One time it was so bad I went to the emergency. They gave me a strong water pill (Lasex) that worked. Then they were fine for awhile. But, they never checked to see why they were so hot and swollen. They got that way once or twice more over the next 18 months. And the pain in my left leg was terrible. I did have Restless Leg Syndrome(RLS) but this was an odd pain.
In the fall of 2011 I moved. (A big stressor) I feel this place that I moved to is hindering my wellness. In fact I feel I have to move again in order to get better. The building is very old and the ventilation system needs to be updated. And it is not handicap accessible. Enough said.
In the spring of 2012 I started hallucinating. What a scary thing. My doctor kept upping the dosage of my meds to help my RLS the past year. I didn’t know I was hallucinating. My son caught it. He also said it was because of my meds. I went into the hospital for 2 weeks. I went off of all medication. I kept my thyroid medication. Hallucinations Gone! I had been on antidepressants for many years. It was the meds that were making me ill. So I have been off of antidepressants ever since. I feel all emotions more. The highs and lows but I am not depressed.
Besides all of this I started to have bleeding issues. I should be in menopause at this point, but instead I am bleeding almost constantly. I went to see one Gynecologist who just didn’t have her priorities right. Luckily, a good friend got me in to see her Gynecologist. I had a D&C which seem to have done the trick and all was well. I thought.
So spring 2012 is here and I live in one of the most beautiful parts of Ottawa with walking paths, waterfalls and a beach. If only I could breathe. For some reason my swimming and walking should be getting easier not harder. Come July I am having trouble walking up a flight of stairs. Something is wrong. Beginning of August I am having trouble even walking to or from the elevator.
August 12 I wake up from a nap I cannot breathe. I am literally gasping for air. I call 911. Ambulance comes and gives me oxygen right away. I am rushed to the emergency. They have to take me through the underground parking because there are stairs outside the front entrance to my building and no handicap ramp.
The oxygen helps my breathing. When I finally get a ct scan done it reveals multiple Pulmonary Emboli(PE). blood clots in both lungs. That was a Monday. I am in the hospital on oxygen until Thursday when I am able to walk without it. I went home on the Friday. I also started blood thinners in the hospital and I had to continue by injection in the abdomen when I got home for a few more days. I then started on Coumadin. But within a week I was switched to a new drug because I was getting headaches from the Coumadin. A few days later I started to bleed again. It got heavier and heavier until I was hemorrhaging and I was so weak I had trouble standing in the shower. On Sept. 4th my son took me in to the hospital emergency. My hemoglobin was down to 66. They had to do a blood transfusion. I was to stay in the hospital for another 6 days. Again this was on a Monday. Because of the bleeding they had to take me off of the blood thinners. On Tuesday they put in a filter in the vena cava inferior (which is the large vein that carries de-oxygenated blood from the lower half of the body into the right atrium of the heart) to catch any blood clots. They went through the right side of the groin and fished it up to the heart area. I was so nervous. But there was a nurse on the left side of my head that any time she saw my blood pressure going up she pumped something in me to calm me down. Yes I was awake during the procedure.
The bleeding stopped by Thursday and I was started back on the Lovenox blood thinners (injections). I was discharged on the Saturday.
I am still on blood thinners. I had the filter removed from the vena cava in November. I was a happy camper when it was out. It went in through the groin and came out through my neck. I did have another short bout of bleeding in October but we stopped it again. I have been fine since. I had my 6 month check up with my thrombosis doctor. My left leg is still problematic. For that reason I have to stay on the blood thinners longer. He also sent me for a lung scan to see how much scarring was caused by the blood clots. He said that about 50% of the clots dissolve while the other 50% turns into scar tissue. I was breathing so well I didn’t know there was any scar tissue.
Well I went for the lung scan which I thought was the same as the ct scan they did when they first found the PE. I did advise them that I was very claustrophobic. They said not to worry. Well, I had a panic attack and couldn’t use the machine. They had to use an older machine. The scanner is the same as the ct scan but with a large square metal box that will sit practically right on your chest as you are lying down and right at your chin. Your arms are above your head. They have to take shots like that as this box moves from one side of you to the other then with you breathing thru a mouth piece with your nose pinched. Then you get radioactive die injected and you do it all over again. I started to shake and was about to hyperventilate. I couldn’t do it. I felt like I was being squished. I did the breathing fast then they had to bring me to another machine which I could just sit on a stool while they tool the pics of my lungs with and without the radioactive die. I haven’t heard anything from the doctor since but it has only been a week.
The blood clots in my lungs came from my legs which is called a deep vein Thrombosis(DVT). The doctors say it couldn’t be caused by my surgery I had 2 years ago because it was too long ago. But no one took the initiative to check my legs right after the surgery when they first started showing signs of clots. When they did ultrasound my legs in the hospital when I had the PE they found the clots and it was confirmed that is where my PE came from. This could have been avoided yet they are still calling this unprovoked, meaning without cause. They say 10% of unprovoked PE’s are caused by early cancer. So once you have a pulmonary embolism, especially one that is unprovoked, they have you go through screening for (female) breast, cervical, and colon cancers.
My thyroid has finally kicked in because I am losing the weight I have gained. I am feeling better since my Pulmonary Embolism. My thrombosis doctor has a heavy accent and all that keeps going through my mind is his comment “walk lots!”
I try to walk every day but damn this fibro gets in the way some days and it’s hard to move.
I know this is very long but I feel better now. I needed to get this down and out.
Thanks for reading this far.
Have a Great Day!
Another great Article from the Fibromyalgia Network. To read the full article I posted the link at the bottom.
From the Skin Tissue to the Brain
It all signals pain!
How can you hurt from head to toe? Research shows the pain control system in the skin, spinal cord, and brain of fibromyalgia patients is overloaded, offering a reason for why you ache all over. In particular, immune cells that generally do not cause pain contribute to the flu-like fibro symptoms that make your whole body hurt.
Nerve Fibers in Skin
Alterations in the way the central nervous system (brain and spinal cord) works are believed to be a major cause of your fibromyalgia pain, but researchers are finding that’s not the only source. The immune cells surrounding the nerve endings in your skin appear to be contributing to your pain as well Seong-Ho Kim, M.D. and colleagues in South Korea took tiny biopsies of the skin tissue from a group of fibromyalgia patients and compared them to healthy controls.1………read more here
Faulty Pain Filter
In order for you to actually feel pain, transmissions from your skin, muscles and other tissues has to reach a level of consciousness in your brain. Otherwise, all sensations, including light touch, would hurt. That’s where your spinal cord comes in handy. The cord’s role is to filter out the less serious nerve signals traveling from your tissues to your brain and from your brain out to your tissues. In essence, your spinal cord works like a pain filter, but studies show it’s doing a poor job in fibromyalgia patients……..read more here
Spinal Cord Opioids
When experiencing fibro pain, you would think the neurons in your spinal cord and brain would release lots of pain-killers to get your symptoms under control. Operating under this assumption, James Baraniuk, M.D., of Georgetown University, and Daniel Clauw, M.D., of the University of Michigan in Ann Arbor, measured the spinal fluid level of naturally produced opioid-like endorphins called enkephalins. They compared a fibro group to chronic low back pain patients (regional pain) and healthy pain-free controls.3
The concentration of enkephalins in the fibromyalgia group was almost fourfold greater than the controls, but pain alone was not the reason for this difference. The enkephalin levels were almost as high in the chronic back pain patients (people with less areas that hurt). This means a fibro patient’s spinal cord is pouring out natural pain-killers (e.g., enkephalins) to contain the pain, but it’s probably inadequate to relieve the many areas that hurt.
Opioid Receptors in Brain
You may wonder if the high concentration of enkephalins in the spinal fluid (which bathes the brain) are not properly activating the pain-relieving centers in your brain. After all, given the high concentrations of spinal opioids, you should not be in so much pain.
Clauw’s team measured the number of receptor sites in the brain that opioid-like substances target to put out the pain. He compared a group of fibromyalgia patients to a group of healthy controls using brain imaging.4
The fibromyalgia patients had fewer opioid receptors available in their brains to regulate pain. Why? Either the elevated amount of enkephalins (opioid-like substances) in the spinal fluid are monopolizing most of your brain’s receptors or there just are not enough of them to get your pain under control.
So Why Do You Hurt?
Assuming you are producing plenty of opioid-like substances to target the pain-relieving receptors in your brain, why do you still hurt all over? Researchers don’t know all the details, but the foregoing findings offer some important clues.
Studies show the skin is a source of continuous pain transmissions traveling to your spinal cord. The cytokines produced by enlarged Schwann cells cause local irritation, which would be expected for injuries or infections, but there is no evidence of destroyed tissue in fibro. Yet cytokines continue to be produced for unclear reasons, causing your flu-like achiness………..read more here
1. Kim SH, et al. Clin Rheumatol 27:407-11, 2008.2. Salemi S, et al. J Rheumatol 30:146-50, 2003. 3. Baraniuk JN, et al. BMC Musculoskel Dis 5:48-54, 2004. 4. Harris RE, et al. J Neurosci 27:1000-6, 2007. 5. Kadetoff D, et al. J Neuroimmunol 242(1-2):33-8, 2012. .
And for the complete article:
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